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Quakerism & Tourettes

 
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jcs_smith



Joined: 12 Nov 2008
Posts: 27
Location: London

PostPosted: Mon Jan 31, 2011 9:07 am    Post subject: Quakerism & Tourettes Reply with quote

When I was a child I used to go to meetings witrh my parents but I was eventually told not to attend anymore when I developed Tourettes and found it impossible to keep still or quiet during an episode. Since then I've never really been back and although I have mostly outgrown my tics I can still find difficulty keeping still or silent - I am the master of the non sequitur and say some odd things. Obviously we live in a much more understanding and tolerant world now but I still feel nervous about attending meetings. Is it likely to be a problem? If I am going to be met with some understanding but made to feel self-concious I would rather not go.
When I was younger i was told that the accepted ettiquette for a meeting was to remain quiet and still until someone is moved by the spirit to say something. Obviously this is something that I can't really do, especially when I'm feeling stressed
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Anthony



Joined: 30 Jun 2004
Posts: 1542

PostPosted: Tue Feb 1, 2011 8:48 am    Post subject: Reply with quote

Hi Very Happy

This seems as if it could be a problem but I hope not insurmountable. The meetings I have attend are not always quite; I find certain noises more of a distraction than others particularly when I know they need not happen or could be avoided, such as those who flick noisily through literature during the whole of Meeting or who stand outside the Meeting room gossiping for all the hear. I would also include those who fidget but not because they fidget but because of the clothes they may be wearing that rustle noisily with every movement. Those who have a persistent cough or other unavoidable distraction doesn't bother me - I just include it in my silence. Knowing what I now know about Quaker Meetings for Worship, if I developed a problem that was a distraction I would sit in one of the outer rooms, particularly if the main worship room could be viewed through a glass door or window, as some can. Perhaps someone from the main assembly could join me, if not, well, no matter - walls and doors can't separate us from the Presence of God. Smile
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Shay



Joined: 01 Jun 2005
Posts: 885

PostPosted: Tue Feb 1, 2011 10:14 am    Post subject: Reply with quote

This might help, a little: http://www.quakerinfo.com/forum/viewtopic.php?p=13543

I don't know who told you not to attend but they were being very UnFriendly. You might want to let one or two people on the facing bench know what's going on (people might think you were epileptic or something otherwise and move to intervene).

Meeting might help with your stress level, and if folks are aware ahead of time you can't help it, the onus is on them to accept you are there for the same reason they are.

One thing though- if the meeting has children, and if your condition manifests in curse words, you may want to wait until the kids move on to First Day School. In most of the Meetings I've seen with children, they sit for 15 minutes, and then go to FDS, until the rough age of reason when they could be expected not to repeat bad words just because they heard them. I say this not to be harsh- kids don't have the same reasoning and ability for compartmentalization as adults.

I hope you go and enjoy the experience! Let us know how it turns out!
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jcs_smith



Joined: 12 Nov 2008
Posts: 27
Location: London

PostPosted: Tue Feb 1, 2011 11:15 am    Post subject: Reply with quote

No-one thought I was epileptic. They just didn't like the fact that I would twitch or sometimes say odd things. People, even quakers, were very ignorant and intolerant in the seventies and eighties.

I don't like the idea of sitting outside the meeting watching them. I do not wish to be visibly excluded in that way - even if it's myself that has to choose to place myself there because of other people's views.
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Shay



Joined: 01 Jun 2005
Posts: 885

PostPosted: Tue Feb 1, 2011 3:30 pm    Post subject: Reply with quote

jcs_smith wrote:
No-one thought I was epileptic. They just didn't like the fact that I would twitch or sometimes say odd things. People, even quakers, were very ignorant and intolerant in the seventies and eighties.


I'm sorry, what I meant is that you should let someone at a new Meeting these days know about your condition, so they know it is normal and not a problem needing attention. I was not making excuses for the people who were not thoughtful enough to include you in everyday life.
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michaeldavidjay



Joined: 21 Dec 2006
Posts: 452

PostPosted: Tue Feb 1, 2011 3:40 pm    Post subject: Reply with quote

Unfortunately, Quakers are people... perhaps well meaning, but we have the same hang ups and prejudiced attitudes as non-Quakers. If we admit this, and see, sometimes it gets better -- if we deny it, and pretend we are better than everyone else, it gets worse as we justify ourselves.

I'm sorry about your experience. Hopefully you can find a community that is patient.
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Anthony



Joined: 30 Jun 2004
Posts: 1542

PostPosted: Wed Feb 2, 2011 6:52 am    Post subject: Reply with quote

Unfortunately, silent meetings are vulnerable to distractions, regrettably, some of them may effect the quality of a settled meeting to the extent that people may find it unacceptable and solutions must be discussed. One response is for the Meeting to accommodate the distractions even though they interrupt the silence and the purpose of the Quaker silence. Another response is for the person responsible for the distraction to cease attending meetings but I guess we agree that this is unacceptable, so a compromise will be needed. Friend JCS - what do you think would be a solution?
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michaeldavidjay



Joined: 21 Dec 2006
Posts: 452

PostPosted: Wed Feb 2, 2011 8:52 am    Post subject: Reply with quote

Not everyone agrees that silence is the purpose -- the first two generations of Friends would not... however if silence is the purpose, then it is wrong to bring very small children.
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jcs_smith



Joined: 12 Nov 2008
Posts: 27
Location: London

PostPosted: Wed Feb 2, 2011 9:45 am    Post subject: Reply with quote

Anthony wrote:
Friend JCS - what do you think would be a solution?


When I was a child and a teenager it wasn't an issue because I wasn't allowed to attend. Now I want to go because I'm curious but I could live a perfectly happy and contented life without ever going back. I suppose I still hold a certain amount of resentment and would like to exorcise that demon by going back, being welcomed and not being treated like a freak. Honestly it is not now and never has been that big a deal. It's just some people who should have known better chiose to make it one
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Anthony



Joined: 30 Jun 2004
Posts: 1542

PostPosted: Thu Feb 3, 2011 1:16 pm    Post subject: Reply with quote

michaeldavidjay wrote:
Not everyone agrees that silence is the purpose -- the first two generations of Friends would not... however if silence is the purpose, then it is wrong to bring very small children.

Friend Michael, If your post was prompted my mine then please re-read as I have not said that the purpose of a Quaker Meeting is silence.
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Anthony



Joined: 30 Jun 2004
Posts: 1542

PostPosted: Thu Feb 3, 2011 1:36 pm    Post subject: Reply with quote

jcs_smith wrote:

When I was a child and a teenager it wasn't an issue because I wasn't allowed to attend. Now I want to go because I'm curious but I could live a perfectly happy and contented life without ever going back. I suppose I still hold a certain amount of resentment and would like to exorcise that demon by going back, being welcomed and not being treated like a freak. Honestly it is not now and never has been that big a deal. It's just some people who should have known better chiose to make it one

Friend jsc,

I have reread you first post and note that you have not yet actually attended a Meeting since you have become an adult; now you say that your tics have lessened. May I ask if you have considered meeting with the elders of a Meeting to discuss your concerns? Perhaps giving a presentation to the members of the Meeting on Tourettes to educate them about the condition, perhaps accompanied by someone from the Tourettets association or other support group. I hope you will now be aware that everyone on this board supports you, we hope you will not lose faith in your attempts to rejoin a Quaker Meeting.
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Kiahanie



Joined: 25 Mar 2008
Posts: 464
Location: Oregon

PostPosted: Thu Feb 3, 2011 3:21 pm    Post subject: Reply with quote

I don't know the nature of the tics or how forceful they are. If confined to your own personal space, I find it hard to believe there would be any problem at all.

The quiet and silence Friends seek is not the absence of sound, but rather the stillness within that allows Spirit to move freely.
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michaeldavidjay



Joined: 21 Dec 2006
Posts: 452

PostPosted: Fri Feb 4, 2011 8:21 am    Post subject: Reply with quote

@Anthony thank you for the invitation to re-read your post.
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